Hope is Dope

1 of 4! 👍🏻

Today is the start of my new chemo cocktail – Adriamycin/Cytoxan. 1st of 4 treatments. It also marks three years since my dad passed away and I miss him every single day. 


Lately, I have been having random dreams where my parents are there. I don’t get to talk to them but I see them. It’s comforting. Because in these dreams I am extremely aware of my current situation. I see myself with no hair and I am fighting hard in these dreams. So it’s nice to feel their presence. 

Yesterday was a good day full of positive people and fun compliments. It was a good day to finally step out of the house following the terrible cold I caught. I mean awful. 🤧 On Monday, I could barely move. I put on movie after movie for Little Har as we sprawled out on the couch. But yesterday I turned the corner towards health. When I went to get my blood drawn, the man at the reception desk complimented my head shape. Who knew that could make a girl feel so good?  Said I was rocking the no hair thing and that I pulled it off so well. He said I was like Sinead O’Conner, back in the good old days 😉 Then the guy who drew my blood complimented the scent I was wearing saying I was soooo calming. I try, man. And when I got to acupuncture, I totally forgot I was scheduled with someone else because my lady was on vacation. When I walked in, my new dr was on the phone so I popped over to the relaxation room and made myself a cup of tea. When we went back to the room, we started the Getting to Know You Game. The first thing she asked me was if I knew what you do on a plane in case of emergency. You put the mask on yourself first and then anyone else that needs help. Right?…. And then she told me a story about a woman she knew who put others before herself while on chemo. I asked why she was telling me this. I mean, I didn’t know this woman at all and this is where she began. Before even asking me medical things. She told me she could just tell that I was this person and that I needed to be reminded. I had kind eyes, didn’t complain when she was running late, and showed a genuine smile when we talked. She could just tell. I’ll take these as compliments too, and as words to truly listen to. 

She told me that every morning as soon as I wake up, I must tell myself that I am most important. Because if I don’t take care of myself, I can’t take care of my family. Because, you know, you can’t fill from an empty cup…that whole thing. When I was leaving she told me “It’s all good. You’re going to be ok.” 💖

The nurse sits by my side and manually pushes it into my port.
Yes, it’s really red.

Today’s chemo- The Red Devil was a trip. It made me super sleepy and fuzzy for a while. Once I snapped out of it enough, I got up to use the restroom and completely forgot that my pee would be red. So that was cool. 😳At lunch later, I ate a beet salad to see just how red I could get this stuff. Pump. It. Up. 

At lunch, a nice lady popped by our table. Her name was Carole. Sweetest thing. She asked me about my treatment and pointed to my port. She told me she was also a survivor and that I am doing great. The comfort that comes with a person like this is indescribable. And her telling me it was all going to be ok was extremely reassuring. I believe her. As she was about to head back to her table she gave me a hug, a wink, and a thumbs up and said “keep on keeping on”. 💖 Will do Carole 👍🏻

Real quick, let’s talk about this weather. I understand several people are totally digging the warm temps. Like the guy at the Kaiser reception desk yesterday. He said it was “ahhhhhhmazing!” But give me a fucking break man. I already made it through another summer pregnancy, living in a puddle of my own sweat. Can’t I just get through ‘chemopause’ with some chill in the air? 80 degrees in December?!?! Poo poo on you So Cal. I am so over of these hot flashes. 

Anyway, I see my oncologist tomorrow for a follow up. I’m really excited to see her and hopefully have some reassurance that things are still going well. I am also hoping to get on the schedule for hydration infusion tomorrow. The holidays have made things tricky with scheduling. So we will see if it happens or if I even need it. Crossing my fingers that I feel super fantastic and can leave a spot for someone else who is in greater need. 

Fun fact: Last night, I dreamt that I met Shannen Doherty. You know- Brenda from 90210. And we sang Paula Abdul songs together at some exclusive nightclub. 
Words of advice: If ever you are feeling down…. go to my Facebook or Instagram and watch the video of John running with the parachute. It’s sure to make you laugh. A lot. Like tears. 🤣

Back In My Safe Space- Taxol #12

1+5+5+1=12! Rolling with my homies- nurse Debbie, nurse Diane, and nurse Mel 😄

  

Done with Taxol! Woot woot! 

I never thought I would be this happy to be back in my chemo chair! Actually, yes, I did. I enjoy being here. I feel like I am actively taking charge. It’s comforting to be hooked up, knowing that the poison is doing its thang. 

I thought I might have to skip again this week because even though my counts have gone up a little, they are still low. But I’m here! I have been having some headaches and the nurses seemed a bit concerned so they paged my oncologist. After what felt like a very long time, they came back to tell me we were all good and I could still get treatment today. Phew. 

While I was waiting for the go ahead, I started to panic. Immediately I wished I brought my Ativan as tears began to fill my eyes. Just then, a lady walked up to my chair. She was holding a handmade blanket and a bag of handmade donated beanies. I pulled it together. She asked me if I wanted either, I politely declined but we talked a little more. 

She walked up just at the right time. She asked me “what are you in for?” And we both laughed. She then told me she was a 6 year breast cancer survivor and showed me her beautiful tattoo over her port scar. Like a badge of honor. Then she told me I was a survivor too. I haven’t really thought of it that way. I didn’t think I could be a survivor until I was in remission. But here I am surviving. 

We talked a bit more and as she walked away she said “I’m doing whatever I want, whenever I want because life is too damn short!” Yup, she is right. And this has been my thinking lately too.  I’ve been telling myself to use the ‘good’ soaps, light the ‘good’ candles, go on that trip, love with all you have and let people know it.  There are no do overs in this life. It’s not like some Hallmark Christmas movie where you get to come back as an angel, learn your lessons, right your wrongs, find love, and then come back to life a changed person. She’s right. Life is too damn short. 

People with or those who have had cancer, in my experience, tend to be the most positive people. Funny right? 

Next week, I start AC. The Red Devil it’s been called. They will manually push the Adriamycin (red) and the Cytoxan will be via pump. Of course, I’ll report back. 

Just another CA girl without the correct clothing for rain. But look, my eyebrows stayed on.

My most recent mantras:

I am healing everyday in every way. 

I will be cancer free. 

That one quickly turns into

Cancer free and gotta pee. It just rhymes so well. And I pee a lot. 

My current read

This Guy 

Possibly 2005?

The moment John fell out of that revolving door at Trophys, I knew I was going to spend the rest of my life with him. I was positive. Intense right? 

I wasn’t too sure about marriage at the time but I was content with being life partners. My forever Sig O. Eventually, we both warmed to the idea of marriage and here we are.

John is my lobster. The person who gets me most. I’m not saying that everything is perfect all of the time. Because, welp, this is life and sometimes life gets hard. But we always manage to pull through and end up stronger. 

John loves me for who I’ve been, who I am, and who I am becoming. It’s safe to say, he is my biggest cheerleader. And I, his. And I’m pretty sure that’s what love is. Am I right?

When my anxiety starts to get the best of me, he’s right there to bring me back. Somehow, he always knows the right things to say. Sometimes I wonder if our roles were switched, would I be able to be as strong and supportive as him? Or would I crumble? How would I know what to say to make things easier for him? 

With this week’s chemo postponed, I will admit, I have not been my strongest. It’s scary to be doing “nothing.” Also, there has been a longer than usual break inbetween Oncology appointments and I am missing her reassurance. My mind has been slipping to bad places and fear has been rearing it’s head again. But John isn’t having any of it. He reminds me that chemo alone doesn’t beat this. I must stay positive. Tonight he said something about us being like water, fluid to fit any situation. I mean, he says it all way more eloquently than that but you see where I’m going. He stays strong. 

Lately, I have been thinking about my reconstruction options. Maybe you remember my post about my visit with the plastic surgeon. If not, I’ll remind you. Reconstruction scares the fucking shit out of me. And I’m not sure if it’s a step I want to take. But I love knowing that John supports me no matter what decisions I make. He has made it clear that he will never love me any less if I decide to skip reconstruction. 

It’s easy to say no to reconstruction now but I don’t know what I’ll feel like after the removal of the girls. I mean, I have lugged them around for so long, it might get lonely. But I’ve been doing some research for when it’s time to make that decision. There is a really inspirational and motivating movement I have been introduced to. #flatandfabulous has helped me realize that I don’t have to have the reconstruction to still feel like a woman. Now, again, I don’t know if that will be my path. But at least I know it is an option. 

While submerged in #flatandfabulous, I found several strong women who have chosen to not have reconstruction. Deep in that hashtag, I stumbled upon Tig Notaro. Now, I realize I am late to the Tig game. But hell, if she is not someone who needs to be in my rad lady posse. She has been through some shit and came out stronger. If you don’t know who she is, she’s a very talented and insanely funny comedian. Last night, John and I watched Tig on Netflix. So many times, it felt as if she entered my body and spoke directly from my heart. Not even just about cancer, but about so many things. Including the feelings that go with the loss of a parent. Or two. 

She is bold and unapologetic and so hilarious. I really hope we can get to one of her shows in the new year, maybe after chemo is complete. Even more, I hope that I can keep my sense of humor like her. Because I can choose to laugh about it all or be pissed and cry. Laughing sounds way more fun. 

Alright, enough emotions. 

Fun fact: Things I wanted to be when I grew up- a veterinarian, a Fly Girl, a stand up comedian.