Gosh, it’s been so long since I’ve posted, I had to look back and see where I left off. And looking back, I had completely forgotten about Puke Fest 2017. It was all a blur…
Puke Fest is officially over and I never had to actively participate. Meaning no puke from this gal. But straight off of Puke Fest, I entered Mood Swing Mania. Maybe that’s why I haven’t posted in a couple of weeks. You would not have wanted to hear what I had to say anyway. Looking back at my ‘notes’ from the last couple of weeks, I was in a dark, dark place. I felt completely alone even with the most amazing support system someone could ever ask for. I felt like the only people who would get it, were/are the people who have been through it and they’re all spread out around the world. And what I really needed was one of them to physically grab me by the shoulders, shake me and then hug the crap out of me.
I have absolutely cried more times in the last few weeks than I did with both pregnancies AND my diagnosis put together. But I am feeling much better these last few days, though John may have a different opinion. I’d been having a hard time processing feelings and kept having the urge to call my parents to talk about it. Then, like a smack in the head, I’d remember I can’t. Even after all these years, sometimes I forget. I know they are always ‘there’ but I needed to hear their actual voices, I needed their words of guidance and comfort. I remember telling John that I felt like a tumbleweed of emotions rolling from room to room, picking up more crap along the way. It was the truth.
It also doesn’t help that it’s October and everywhere I look, it’s pink. I appreciate it when the proceeds actually go to research for a cure. But companies that sell pink ‘for awareness’ and are really only in it for the profit, they sicken me. I am aware of breast cancer. You all are aware. Now we need to find a cure.
Also adding to my medical menopausal mood swings and stress has been a change in employment, I’ve recently rejoined the working world with a new company. Starting something new always makes me nervous and this is no different. Add to it, leaving my kids for such long periods has been an adjustment.
Making the decision to leave Seneca for a new position was difficult and emotionally taxing. The staff had become my Orange County family. I found amazing friendships, endless support and tons of love. I grew professionally and personally through my time there and am forever grateful for the opportunities given to me.
Ultimately, I made the decision to find part time employment so that I can spend more time with my babies. My new company is great. I really enjoy the work I am doing and the people I get to spend my time with. Everyone has been super welcoming and I am thankful for this new adventure.
I know I talk about my acupuncturist often but I can’t help it, she’s great!! I even told her this week she’s been a part of my rad lady posse and I think she digs it. I am so thankful for her, she continues to help me through these crazy times with her patience, skill, knowledge, etc. Bless her heart, if I had to repeat myself as much as she does to me, I’d say ‘peace out, crazy kid’. But she doesn’t. She has found her purpose and she’s damn good. Every session with her, I leave feeling like I can handle anything.
My last report stated that my feet and hands weren’t terribly painful from the new chemo. Well that shit changed quick- about day 9 of my second cycle on Xeloda I could barely walk. My feet felt on fire, swollen and tender. As if I had walked across burning coals. My fingers were also in pain. At each crease, it felt like the skin may rip open. Last Wednesday was my last dose of that cycle and within one day off X, my feet and hands already felt some relief. They’re not 100% better but tolerable. I start back up this Wednesday for another two weeks.
On Friday, I got to see all my Kaiser friends. It’s absolutely insane how comfortable I feel there, my home away from home. I guess it’s better to feel comfortable than freaked out and damaged every time I enter those doors, yeah? My hysterectomy follow up was great. I got cleared to take baths and even go back to yoga. Thank goodness because those are two of my main coping skills for life.
The Filloon Fam recently got to take some beautifully fantastic family photos thanks to The Magic Hour Foundation. They are a foundation that partners with local photographers who provide photo sessions at no cost for families fighting cancer. Our photos turned out perfect, it makes my heart happy each time I look at them. Not only were we able to download the pics but they sent us a beautiful photo box with 5×7 prints of all of them! It’s great how something as simple as family pictures can make such a huge impact.
I guess that’s all for now, I’ll be sure to update with the next cycle of Xeloda. Here’s a few highlights from the last couple of weeks. ✌🏻