I met Jamie via the Kick Ass Cancer Mamas Facebook group. Here is her story…
Tell us your story / stats:
At 5:30 p.m. on Valentine’s Day in 2007, as a 27-year-old, I should have been getting ready for a romantic dinner with my husband—where we would celebrate my 14-week pregnancy. Instead, I was in a doctor’s office, learning that I had invasive ductal carcinoma. I hadn’t been too worried a few days earlier, when I first felt the lump while taking a bath. I told my husband that this was a glaring omission on the part of the editors of “What to Expect When You’re Expecting.” Instead of dinner, I was listening to an oncologist explain that I had to start chemotherapy right away. Trying not to panic, I immediately asked how I could possibly get chemo while I was pregnant. I’d given up coffee, and now my doctor wanted to pump me full of poisonous chemicals? It seemed crazy. But after seeking out second and third opinions and doing my own fact-finding, we agreed to go forward. At 27 years old and 14 weeks pregnant, I was diagnosed with triple negative breast cancer, a particularly aggressive form, so waiting until I gave birth was not a viable option. Even though I had carefully researched my decision, once the therapy began I was paralyzed by fear that my baby was being harmed by the harsh medication. To bring peace of mind, my healthcare team came up with an innovative solution: weekly ultrasounds of my baby. During a time when I was losing my hair, my toenails, and my fingernails, it was a way for me to see he was okay in there. As long as he was still alive, I told myself everything would work out. I was six months into my ten month chemo regimen when our son, Blake, was born perfectly healthy. I imagine every cancer survivor is changed by the experience—but most of them don’t get the gift of a child at the end.
C aside, tell us about yourself. What makes you, YOU!
I am a mom, a coffee-junkie, a wife, a wanderlust, a friend, a neighbor, a lawyer, Hamilton-obsessed, a professor, a baseball fan, a runner, policy-optimist, and full of hope.
Thoughts on the pink…
I am so grateful and proud of the work of these small but mighty non-profits, helping people living with and beyond cancer: National Coalition for Cancer Survivorship at http://www.canceradvocacy.org , The Pink Fund at http://www.pinkfund.org , Triage Cancer at http://www.triagecancer.org , Get In Touch at http://www.getintouchfoundation.org .
If you could send a message to yourself from 10 years ago… how would that go?
This is non-responsive to this question but . . . When I was first diagnosed, I would pray to God and ask him for kindergarten. I wanted to be there for Blake’s first day of kindergarten. Today, Blake is 11 years old and in the 5th grade. God is good, science rocks, and I am one lucky lady. The hardest part of joining the sisterhood, especially the sisterhood of young women with cancer, has been the tremendous loss and grief. My life is richer beyond measure for knowing these women and being blessed to call them my sister-friends, but my heart and soul aches for the loss.
What are you passionate about? Is this different than what you were passionate about before dx?
Access to healthcare. Families facing a cancer diagnosis, or any other chronic medical condition, shouldn’t have to wonder whether they can pay their rent or health insurance deductible this month. I am grateful for the work that organizations like the National Coalition for Cancer Survivorship (NCCS), Triage Cancer, and the Pink Fund are doing to reduce the financial toxicity facing too many patients today.
Do you have a favorite quote, mantra, phrase, or curse word?
I absolutely had a C mantra I said to Blake while I was pregnant in treatment. It is not original … I stole it from my favorite movie, Why I Wore Lipstick To My Mastectomy: We are the sky and nothing can touch us … We are the sky and we will remain unchanged.
If people take away anything from your story, it would be…
Hope lives . . . my hope is an 11 year old boy who has stolen my heart.
*** Jamie kept a personal blog during treatment which may be helpful to other young mothers finding themselves on this journey- www.pregnantwithcancer.blogspot.com.